Group Viewing of Hanna’s video!
Hanna was invited to participate in the annual Woordfees arts festival in South Africa. She wrote seven short personal essays describing moments in her journey toward racial healing. Read by Erica Wessels (who voiced the audiobook of "Bedsores and Bliss) and illustrated by Marc Rettig, the result is a 35-minute film of deep beauty and reflection. Group viewing on Zoom: Saturday November 15, 1:00pm US Eastern, 8:00pm South Africa. See the flyer in this post for the Zoom link.
October 2025: Money Talk
An update on the money side of Hanna's life and care—a visual snapshot of resources and needs, a picture of inflows and outflows for the last two years, and "the invisible balance sheet." We are running low on cash, but are otherwise enriched. Please donate if you can.
South Africans: See Hanna’s film at Woordfees through October 19
Live within range of Stellenbosch? Hanna's new writing, read by Erica Wessels and with video created by Marc Rettig, is showing through October 19 at Libertas Farm. Part of "Die Veldhospitaal" at Woordfees 2025, "Choosing to See" is looopin
We Trust our Wise Heart
A new piece of writing by Hanna! "We are here now. We trust our wise heart." Hanna's response to a mindfulness writer's question about her practices of mindfulness while living and dying with ALS.
Books, art, voice
Update on Hanna's words, art, and voice. Beautiful audiobook! Gorgeous greeting cards! A video tour of a gallery show. And parting words from Gregory Orr, via Marc.
July 2025: How’s Hanna? How Are the Caregivers?
Update on Hanna's health and care as of July 2025
South Africa folks: help with Woordfees?
Hanna (with Marc) is creating an art installation for Woordfees '25 in South Africa this October. We're looking for help in reaching out to potential sponsors to support production costs.
Finance request: it’s time
It's time to make a clear request for financial support. Thank you, so much.
March 2025: How’s Hanna?
Update on Hanna's health, care, finances, writing and more as of March 2025
2024 Retrospective
Looking back over 2024, a year of progressing symptoms, continuous change, daily adventures, tears, laughs, and togetherness. Here's a timeline, photographs, the year in numbers, and reflections from Hanna.

