Singalong!

Photo gallery: an evening of singing together for Hanna's "May birthday" on the 17th.

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May 2024: Request for donations

New needs, and a new fundraising campaign.

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Seeking a compassionate caregiver

Here is a job description for a full-time caregiver for Hanna in Pittsburgh, starting as soon as you're available! Please pass this on to anyone you think might be right.

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February 2024: How’s Hanna?

An update on Hanna's health, finances, and experience. Life with a feeding tube, shoulder pain, and progressing symptoms, along with writing, baby chicks, and endless generosity of care.

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Birthday song: community magic

On Hanna's birthday, in the cold clear winter night, a group of people gathered under Hanna's balcony for a serenade.

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A dying girl goes to grad school

A letter Hanna wrote to fellow students and faculty at Carlow University, describing her condition and requesting their collaboration in her experience.

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Ireland, Beet Juice, Sea, Moon, Gratitude

Moments and stories from Hanna's time in Ireland, each an example of the dual bounties of loss and gratitude that come with ALS.

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Video: Grappling with Acceptance

Video of Hanna's talk at Creative Mornings Pittsburgh this past May. The theme that month was "Acceptance"--a challenging topic for someone diagnosed with ALS. With the help of friends, Hanna brings honesty, humor, and profound invitation to us all.

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Update from South Africa

Hanna shares rich impressions and reflections from her time in South Africa. Marc adds wise-cracks. At the end we describe some of the ways in which Hanna's symptoms are progressing.

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Update: Back pain, South Africa, and tadpoles

As ALS weakens her core strength, Hanna increasingly has to cope with back pain (along with other progressive symptoms). Meanwhile she is in South Africa with dear family and all the joys of home. Her experience continues to mix this joy of life with physical difficulty and the anguish of loss. Eish! (as they say in South Africa)

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