News Update

Here is a job description for a full-time caregiver for Hanna in Pittsburgh, starting as soon as you're available! Please pass this on to anyone you think might be right.

An update on Hanna's health, finances, and experience. Life with a feeding tube, shoulder pain, and progressing symptoms, along with writing, baby chicks, and endless generosity of care.

On Hanna's birthday, in the cold clear winter night, a group of people gathered under Hanna's balcony for a serenade.

Hanna shares rich impressions and reflections from her time in South Africa. Marc adds wise-cracks. At the end we describe some of the ways in which Hanna's symptoms are progressing.

As ALS weakens her core strength, Hanna increasingly has to cope with back pain (along with other progressive symptoms). Meanwhile she is in South Africa with dear family and all the joys of home. Her experience continues to mix this joy of life with physical difficulty and the anguish of loss. Eish! (as they say in South Africa)

We seek donations of air miles with Delta Airlines or one of its partner airlines, to accommodate Hanna's excruciating back problems as she returns to the US from South Africa.

Hanna has safely arrived for a month (maybe two) with family in South Africa. And friends have written a great report of the "Design for the Inevitable" event conducted by Hanna and Marc.

A general update: celebrating the writing workshop in Ireland, experiencing both gratitude and the concern of progressing symptoms. Next up: a lot of doctor's appointments, and two months in South Africa.

A general update: Hanna is doing well, all things considered. She has a new ventilator and cough-assist device, and tools to help her communicate. The writing workshop in Ireland is going well. People have responded incredibly with financial support.

Hanna will be the featured speaker this Friday for the Creative Mornings event. It’s, you know, Creative Mornings, so if you want to start your day with coffee, interesting folks, and Hanna, it all starts at 8:30am.