Updates from Hanna

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February 2024: How’s Hanna?

An update on Hanna's health, finances, and experience. Life with a feeding tube, shoulder pain, and progressing symptoms, along with writing, baby chicks, and endless generosity of care.

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Birthday song: community magic

On Hanna's birthday, in the cold clear winter night, a group of people gathered under Hanna's balcony for a serenade.

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Update from South Africa

Hanna shares rich impressions and reflections from her time in South Africa. Marc adds wise-cracks. At the end we describe some of the ways in which Hanna's symptoms are progressing.

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Update: Back pain, South Africa, and tadpoles

As ALS weakens her core strength, Hanna increasingly has to cope with back pain (along with other progressive symptoms). Meanwhile she is in South Africa with dear family and all the joys of home. Her experience continues to mix this joy of life with physical difficulty and the anguish of loss. Eish! (as they say in South Africa)

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Delta air miles to help Hanna?

We seek donations of air miles with Delta Airlines or one of its partner airlines, to accommodate Hanna's excruciating back problems as she returns to the US from South Africa.

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Short update: Hanna in SA + event summary

Hanna has safely arrived for a month (maybe two) with family in South Africa. And friends have written a great report of the "Design for the Inevitable" event conducted by Hanna and Marc.

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Update: back from Ireland, ALS is always moving

A general update: celebrating the writing workshop in Ireland, experiencing both gratitude and the concern of progressing symptoms. Next up: a lot of doctor's appointments, and two months in South Africa.

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Update: new gear, travels, and bountiful support

A general update: Hanna is doing well, all things considered. She has a new ventilator and cough-assist device, and tools to help her communicate. The writing workshop in Ireland is going well. People have responded incredibly with financial support.

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Event: Hanna at Creative Mornings Pittsburgh, 26 May

Hanna will be the featured speaker this Friday for the Creative Mornings event. It’s, you know, Creative Mornings, so if you want to start your day with coffee, interesting folks, and Hanna, it all starts at 8:30am.

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Update: feeling better, Mom, medicine, and a new fund

Hanna's energy and mood continue to improve, though her symptoms are also progressing. Her mom visits soon, and Hanna has received a wonderful honor as a writer. We have an update on finances, and two ways to help financially.

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