Updates from Hanna

I am doing well. I started full doses of MG meds last week, and feel slightly better. But my energy is zapped. More doctor visits in Feb and March. My three learning edges: income, a web of care, and receiving help.

Details of what we learned from Hanna's EMG and battery of blood tests. This is probably not Myasthenia Gravis, but the next two weeks are needed to confirm that. There is a much more difficult possibility, uncertain but necessary to begin considering.

Hanna visited a neuromuscular specialist today. Next steps: a round of blood tests that look for many different kinds of indicators, intended to support or eliminate possible diagnoses. And an EMG test—electromyography—which will happen next Friday. After that, the doctor expects to be able to make a diagnosis.

Continuing to chase a good diagnosis. The following tests are happening between now and the first week of January: CAT scan, blood tests for this and that indicator of this or that condition, an appointment with a neuromuscular specialist for a swallow and lung study.

I had a good meeting with the neurologist yesterday and they suspect I have Myasthenia Gravis, a chronic autoimmune neuromuscular disorder. I am helped by knowing there is a possible diagnoses. Next steps are a slew of tests, scans and muscle studies to confirm and gain more insight...

I’m in an interesting time with my health. I’ve been having trouble speaking—making words and using my voice and having enough air for it. I’ve had multiple tests: CT scan, bloodwork and yesterday and MRI which all looks normal. This is a relief and a mystery. Today I’m meeting with a neurologist to see what next steps could be. This is new for me, and it has consumed a lot of my attention...