CareForce on stage at the Polish Hill Variety Show

Dear folks, we’re aware we haven’t updated you since mid-May. This is short—the main thing is, we wanted to show you a video!

Briefly,

– Hanna’s symptoms continue to progress, with corresponding upping-of-attention to her movement, balance, and overall care.

– Hanna continues to write, using a Tobii-Dynavox gaze-tracking device. Like most of the gear designed to support people in her situation, it’s both wonderful and infuriating. Hello, learning curve.

– We have regular help from two paid caregivers

– We are acquiring a used wheelchair-accessible van, for a price that really amounts to it being a gift.

– The major themes beyond basic care: end of life planning, hunger for continued connection to friends and family, creative voice (Hanna was just the guest on a podcast; more about when it’s published), spiritual life and fulfillment through this wild mix of loss, vitality and community.

Now…. On to the show.