How's Hanna doing? What's she saying? Anything I can do?
Hanna has an encounter
A place for Hanna to communicate with family and friends as she learns to live with ALS.
How's Hanna doing?
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Latest update
November 14, 2025
Reminder: Hanna’s video viewing Saturday 15 Nov, 1pm US Eastern, 8pm SA
Tomorrow! We can watch Hanna's film together. Saturday November 15, 1:00pm US Eastern, 8:00pm South Africa time..
November 2, 2025
Group Viewing of Hanna’s video!
Hanna was invited to participate in the annual Woordfees arts festival in South Africa. She wrote seven short personal essays describing moments in her journey toward racial healing. Read by Erica Wessels (who voiced the audiobook of "Bedsores and Bliss) and illustrated by Marc Rettig, the result is a 35-minute film of deep beauty and reflection. Group viewing on Zoom: Saturday November 15, 1:00pm US Eastern, 8:00pm South Africa. See the flyer in this post for the Zoom link.
Donate to Hanna's care
Hanna’s care, for longer better life, costs $8,000 to $9,000 per month.
A quick pop-up form, if that’s all you need.
The main page for the fundraising campaign
GiveButter accepts amounts only in US$. Here is a handy currency conversion tool.
Read more about ways to help
Hanna's book!
Hanna’s first book, Bedsores and Bliss: Finding fullness of life with a terminal diagnosis, is available in print, as an eBook, and soon as an audiobook. It’s SUCH a good, true, honest, funny, tough read.
Hanna illustrated a beautiful, charming and funny children’s book called Boppa’s Bald Stories. A man got bald thirteen different ways! His wife wrote a book. Hanna gave it enchanting images.
Short writings from Hanna
Early after her diagnosis, Hanna was writing about gratitude and grief, including reflections on ALS. Here are the most recent posts.


