How's Hanna doing? What's she saying? Anything I can do?
Hanna has an encounter
A place for Hanna to communicate with family and friends as she learns to live with ALS.
How's Hanna doing?
Subscribe
Receive an email when an update is added to this site.
Latest update
October 24, 2025
October 2025: Money Talk
An update on the money side of Hanna's life and care—a visual snapshot of resources and needs, a picture of inflows and outflows for the last two years, and "the invisible balance sheet." We are running low on cash, but are otherwise enriched. Please donate if you can.
October 17, 2025
South Africans: See Hanna’s film at Woordfees through October 19
Live within range of Stellenbosch? Hanna's new writing, read by Erica Wessels and with video created by Marc Rettig, is showing through October 19 at Libertas Farm. Part of "Die Veldhospitaal" at Woordfees 2025, "Choosing to See" is looopin
Donate to Hanna's care
Hanna’s care, for longer better life, costs $8,000 to $9,000 per month.
A quick pop-up form, if that’s all you need.
The main page for the fundraising campaign
GiveButter accepts amounts only in US$. Here is a handy currency conversion tool.
Read more about ways to help
Hanna's book!
Hanna’s first book, Bedsores and Bliss: Finding fullness of life with a terminal diagnosis, is available in print, as an eBook, and soon as an audiobook. It’s SUCH a good, true, honest, funny, tough read.
Hanna illustrated a beautiful, charming and funny children’s book called Boppa’s Bald Stories. A man got bald thirteen different ways! His wife wrote a book. Hanna gave it enchanting images.
Short writings from Hanna
Early after her diagnosis, Hanna was writing about gratitude and grief, including reflections on ALS. Here are the most recent posts.


