How's Hanna doing? What's she saying? Anything I can do?
Hanna has an encounter
A place for Hanna to communicate with family and friends as she learns to live with ALS.
How's Hanna doing?
Subscribe
Receive an email when an update is added to this site.
Latest update
February 3, 2026
Burial Service
Everyone is invited to a graveside service at Penn Forest Natural Burial Park on Wednesday, February 4th at 3 pm.
Donate to Hanna's care
Hanna’s care, for longer better life, costs $8,000 to $9,000 per month.
A quick pop-up form, if that’s all you need.
The main page for the fundraising campaign
GiveButter accepts amounts only in US$. Here is a handy currency conversion tool.
Read more about ways to help
Hanna's book!
Hanna’s first book, Bedsores and Bliss: Finding fullness of life with a terminal diagnosis, is available in print, as an eBook, and soon as an audiobook. It’s SUCH a good, true, honest, funny, tough read.
Hanna illustrated a beautiful, charming and funny children’s book called Boppa’s Bald Stories. A man got bald thirteen different ways! His wife wrote a book. Hanna gave it enchanting images.
Short writings from Hanna
Early after her diagnosis, Hanna was writing about gratitude and grief, including reflections on ALS. Here are some of those writings.
We are no longer posting new writings here. You can get Hanna’s published writing and art here, and subscribe to be notified about her new work coming in 2026 here.


